Our current Board members (as of June 2025)

  • John Metzcar (AMEND USA President)

    John Metzcar is a graduate student at Indiana University in the Luddy School of Computing, Informatics, and Engineering, studying cancer biology using methods from mathematical oncology, complex systems, bioengineering, and informatics. He was diagnosed with multiple endocrine neoplasia 1 (MEN1) after great encouragement from a previously diagnosed family member. He has volunteered with AMEND USA since 2018 after deciding to become more directly involved in the community after the diagnosis of an MEN1-related cancer recurrence. When not coding, reading on mathematical biology, NETs and MEN or helping AMEND USA run smoothly and accomplish its mission, he likes reading, Marvel movies, the great trails, parks, restaurants and farmers markets around Bloomington, IN, and of course, hanging out with his family.

  • Mary Metzcar

    Mary Metzcar is an IT professional, MEN1 patient, and fierce cat mama. She has worked as a software engineer and business analyst in various healthcare IT settings including clinical research management software, electronic medical records, and lab operations software. She’s well aligned with her current employer who is on a mission to eradicate cancer. With one cat in her lap and another on her keyboard, she assists the AMEND USA board by managing the website and finances.

  • Thomas Lehrich

    Thomas Lehrich earned his Bachelor of Science in business from Boston University and holds a Juris Doctor. He practiced transportation law for over two decades. As President of the board of directors for the Plus One Foundation, a traumatic brain injury foundation in Seattle, he leads a nonprofit serving the neurological community. Tom designed the national neurological educational program called Think aBout It. TBI 2025 is a comprehensive educational series on traumatic brain injuries and neurological conditions. He has published numerous articles on the topics of airspace, drones and commercial space.

    Tom is a founder of Red Barn Publishing. He is a children’s book author and has published five children’s books in the wildlife series “The Adventures of Backpacker Billy and Shave”, a series on adventure and wildlife for young readers.

  • Jo Grey

    Jo Grey has been the Chief Executive Officer of the Association for Multiple Endocrine Neoplasia Disorders (AMEND) in the UK since 2008.  She became passionate about providing information that patients could actually understand after her own diagnosis of multiple endocrine neoplasia type 2 (MEN2) syndrome in 2000 and was involved with AMEND from its inception in 2002.  Along with the responsibilities of running a non-profit, Jo is an enthusiastic patient advisor on several research initiatives with some of the world’s top specialists in these diseases.  When not working or traveling, Jo loves spending time with her two Beagles, Dave and Doug (and her husband and grown-up kids).

     

  • Stephanie Alband

    Stephanie Alband, MBA, has over 25 years of experience in the nonprofit industry, mostly focused on rare disease and rare cancer. Her prior experience includes working with the Huntington’s Disease Society of America and Angioma Alliance. Most recently, she was Executive Director for Pheo Para Alliance for seven years. Her volunteer leadership experience includes a tenure as President of the International Neuroendocrine Cancer Alliance (INCA) from 2024 – 2026, and serving on various patient-focused committees. She currently works for Know Bad Daze.

    Her experience with her daughter’s rare cancer journey in 2014 and again in 2017, has helped her better understand and support the unique challenges patients and caregivers face. Stephanie currently works as Director of Finance and Operations and lives in San Diego with her husband and two girls. She is focused on supporting the sustainability and growth of AMEND USA to serve MEN patients.

  • AMEND USA Medical Advisory Board

    AMEND takes its responsibility of supplying accurate information to patients very seriously. As such, the AMEND Medical Advisory Team are imperative to the production of our patient resources such as our website and patient information books. All our advisors give their time freely and AMEND is very grateful for their help and commitment.

    Note: AMEND is not allianced with any one particular medical facility and tries to ensure that its advisors are geographically spread in order to provide balanced opinion and information.

    Click here to view the current members of our AMEND Medical Advisory Board.