5 May 2026
AMEND USA Launches National Community Survey to Shape Future Programs and Services
AMEND USA announces the launch of its 2026 Community Survey, a key initiative designed to better understand the needs, priorities, and experiences of individuals connected to the Multiple Endocrine Neoplasia (MEN) community. The survey is the first of a series of surveys that will inform the organization’s strategic direction, programs, and services for the organization. Our first survey, which takes approximately 5 minutes to complete, is open to a wide range of stakeholders, including patients, caregivers, family members, researchers, industry, and medical professionals. Broad spectrum findings from the survey will be shared on AMEND USA’s website and social media channels in the coming months.The survey is designed to capture a comprehensive snapshot of the MEN community, including:– Community Representation
– Engagement Preferences
– Current Engagement
– Trends
– Priorities
– Information NeedsThis survey is an important step in AMEND USA’s commitment to building responsive, community-driven programming. By gathering direct input from those impacted by MEN, the organization aims to strengthen support systems, improve access to information, and foster deeper connections across the community.
“Multiple endocrine neoplasia disorders are rare diseases, and that rarity means patients, families, and other community members can feel overlooked, unheard, and misunderstood. AMEND USA views that as a call to action. We’re excited to hear directly from the community and furthermore ensure our programs and services reflect the needs of those impacted by multiple endocrine neoplasia disorders as well as those serving the patients and caregivers” said AMEND USA President John Metzcar.